We don’t always want the special treatment

I can see why some people could get miffed about the special treatment given to people with apparent impairments. I’m not saying they should, mind you. But yes I can see why it could happen. It comes down to a failure to explain the basis of “special treatment”. Jumping of the queue, and carrying of heavily laden bags through a no-bag area through to a bag area two of the way I was encourged to violate the rules in plain sight and to the rightful challenge of an onlooker who was trying to take more in than she ought.

I was rushing to keep up with a rather harassed security guard who was required to escort me through the tradesmen’s entrances to my destination the beautiful Dixson library — where bags are allowed, via the connected Mitchell Library where they are not, complete with security gates and info – desk guy simply says “she’s in a wheelchair”.

Now there was a reverence to my chair indeed. But the shorthand answer wasn’t enough and did nothing for relations between the sitters and the rest

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boy can I relate

Emma from Writer in a wheelchair who lives in the UK had a very similar experience to me with both of us having chair issues. Her list of helpers was a long one. Her summary a good one.

They say it takes a village to raise a child. It feels like it takes much more than that to cope with a broken powerchair.

Indeed. Even if they don’t know you or even how to help. Check out the rest of her post.

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little old me

I’m sitting in the Apple store in Sydney city with my iPad and a flat wheelchair battery. I’m literally stuck waiting for about an hour for a friend to finish. I’m sorry for yet another longish delay. There are no really good reasons fir it and there were/are plenty of things I could “talk” about, but I’ve either been out and about, wiped out or just busy online doing other things.

I’m ok though.

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More than tolerence

Stella’s editorial on Ramp Up is spot on. We tolerate being just tolerated. We talk about respect, we might ask for it. We don’t expect equality . Therefore logically we don’t get it as often as we tell ourselves privately we should.

We tolerate really bad weather. We tolerate that annoying person who sits next to us in an exam clicking their pen incessantly. We tolerate a cold, a sore throat, that strange outbreak of warts on our left foot. When asking people to be tolerant of disability in our society, are we asking them to put up with us, to endure our existence?

Our unwillingness to expect more than mere tolerence might in fact have something to do with our individual situations and the individualness of our situations. I know that there are many days when I for one merely tolerate my impairment quite apart from any disabling effect that leaving my house might produce. This might as others are starting to argue, be the main weakness of the Social Model of Disability, that we don’t take enough notice of the individual effects of our impairments.

But regardless of why we have tolerated mere tolerance this is a vital call, and a timely one. We all seem to be getting less tolerate of each other. So the time to make do with tolerance of people with disabilities is over. We need full acceptance and incorporation.  Is it too much to ask that we be um … er…. citizens?

We can expect to get bruised and battered, but we’ve been there done that, haven’t we? We need to do that again, as individuals and agencies. Together. United. For ourselves.

Last word to Stella:

The time has come for disabled people show zero tolerance for discrimination, for transport we can’t use, for information that’s not accessible to us. We need to show zero tolerance for the restriction and denial of our human rights.

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What I’ve learnt so far in 2011

Thanks for sticking with me while I took a week off.

It was a good week. I;

  • did get some reading done, including disability related stuff I will share here at some point,
  • caught up on what was almost an over supply of unplayed podcasts, and unsubscribed from a few
  • was reminded that Sydney can get four seasons in one day, just like Melbourne, and that summer is still trying to pop through
  • saw that there is a very nice and dignified way to close a blog (very sad),
  • learnt that customer service is only as good as your last experience,
  • ate good food with great people,
  • re-discovered that I’m shy, and tire more easily
  • lost some make-up brushes and make-up pencils under a table,
  • found some rest and health, and,
  • committed to being happy as a project

I also worked out that my readers don’t like surveys, but it will stay for a few more days. I have made a couple of changes that might help load times. The coffee cup is gone from the sidebar (but if you want to you can find it under any post), and I’ve turned some widgets into links in the sidebar as well.

So there you go …. I’m back

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Thank you for donating

Donations to TVFDH will go towards internet, hosting and domain registration. Any extra will be donated to Guide Dogs NSW and/or Amnesty International. I’m putting this up because I’m taking the advertising down but people have asked how the can donate.


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Taking a break, but while I’m gone let me ask you 6 quick questions

?Which was your favourite post on the view from down here this year? You’ll have a chance to review the archives while I’m gone…

I have a few favourites but I’m curious about yours. The poll (with a couple of extra questions to see who you are and make sure I’m not too boring) will be open for a week while I take a week off and go low tech. When I come back I’ll profile the winning posts and see where that takes us.

Hope you don’t mind responding :) If you know other readers of the blog in your circle can you let them know as well. Its anonymous unless you want to leave your details

[SURVEYS 1]

See you all in a week, and happy new year

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two gifts — a lesson in humanity

I try an write 750 words a day  in addition to anything I do here when I’m up to it. This is an extract from today’s entry. It happened yesterday after tha International Human Rights lunch and Awards.

“Then came the really outwardly surreal bit. While I was on the phone with FM, sitting at the corner of the flight of stairs in the queen vic building  facing away from the foot traffic so I could be heard I got two gifts in the space of 5 mins. Very different. A cigarette from a guy who looked like it was much more precious a resource to him than it ever was going to be to me even in the days when I smoked. He just walked up from behind me, and with a gruff “Here ya go” dropped a single cig into my slightly opened green guess bag. I tried to protest and he was gone. There it sat. More precious in its intent than its usefulness. I can honestly say I have had no temptation to light up which is interesting and reassuring. I’m not sure if that if as much about the story of that particular smoke or generally.

While I had been talking to FM I had had a woman in her 50′s “pop her head” in front of me and say ok you are on the phone. After the cig delivery while I was still sorting that and the recent  conversation in my head, she returned carrying  a plastic bag and reaching in she produced a neatly wrapped gift and introducing herself as Lois she said she wanted to give away gifts just to spread some joy and let people know that Jesus loves them. I normally reject these gifts immediately particularly from people who “appear” to pity me. But in the spirit of the cigarette guy and International Day of Human Rights and after the mental gymnastics of sorting out Monday I was more open. I’m glad I was. She was out to care and encourage, not pray for two working legs and condemn. She was lonely. I was stressed. It was nice. I reassured her that I “knew Jesus” and we talked of Joni Eareckson Tada and her motivation. I was able to gently dismantle some of the dear woman’s assumptions about my level of impairment and care needs. I was able to be company and reassurence. The gifts were soap and chocolate. And she gave me a copy of Joni’s latest book.

I rolled away from Lois, initially alarmed that complete in dress heals and makeup direct from the Sheriton that I had seemed needy. Did I look extra crippled today?

Then I stopped. Lois was right. It was an answer. Despite the great day., I was feeling sore and stressed and overwhelmed lonely and cynical as well as everything else. Before I learned in that moment to enjoy the friendship of humanity.”


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I love this idea

I’ve always been a fan of the idea of the “urban family”; a collection of no less loyal, honest and lovingly individuals more present than the ideal family.

Like a guilty pleasure (make mine a soft gooey cheese), I’ve been re-watching the sex and the city tv shows over the last little while. Whatever you might think of the show for any number of reasons, it has built six seasons, two movies and a noted brand. The glue that holds the movies together is the friendship over age, time and distance.

Danimezza puts it well in this guest post.

The friends who hold you tight when your failing, who make you belly laugh when all you want to do is cry. They know your favourite wine, your guilty snack and when you need to be told the harsh truth…

I call them the 2 am crew and when they are real, they are real and they are there for you, and you them.

Update: This is my 250th post on TVFDH. Feels apt.

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