values added

Interesting take on “assisted suicide” as a care prevention option.

This couple were apparently in good health but precisely because they were in good health now was the time of their choosing;

“Mr and Mrs Milner’s daughter Chrissy said her parents had been in good health but did not want to get to a stage where they would be too ill to care for themselves. She said they felt they had to pre-empt any possible serious deterioration in their health.”

And this from the letter signed by both Mr and Mrs Milner;

“I have made many visits to friends and relatives in care homes. They cannot wash, dress, feed or toilet themselves. They cannot get out of the chair or walk. This can go on for a long time – years.

Long before we reach this stage of degeneration the quality of life for us would be unacceptable, cruel and inhumane.”

This is probably the main area of public commentary and thought where I come over as, dare I suggest, my most conservative. My biggest issue is the Milners objection to living a less than perfect life.The danger seems to be in leaving people with the impression that unless everything is just the way it always was, or the way you want it  life is “not good enough” to live. That may or may not be appropriate for the Milners’ or the late Christopher Reeves who made similar comments following his injury. But as  someone who occasionally needs help with all the things that letter listed, I’d like to think I contribute and have added value even at those times my health was at a low point and I needed to adapt.

Advocates of this position have told me that it isn’t personal: that they make no judgement about those of us who choose to live and hopefully contribute in spite of our challenges. They often heroise us; collectively for living.

If I had a dollar for every time someone told me they couldn’t live with my disability…. And there have been times when I thought they were right.

Each person will make their own decisions about end of life. I have no issue with the decision they have taken. I take issue with the publicity they sought by seeking to have the letter published.

He said his first letter was published 60 years ago and asked that this, his last letter, would also be published.

My quams are about the social responsibility of turning your choice into a headline and the impact that has on the rest of us

At the point that you write to the newspaper, or post to a blog claiming that you want to get out while you’re ahead  you add to the debate and the value of choice that you advocate is compromised. You are in a position to place value and the associated judgment on all life, not just your own. On the recent paraplegic who is trying to piece it together on his way to physiotherapy; on the teenager whose parents have just divorced for whom just the way it was seems a long way away. Either of these folks could be flicking through the paper and read your assertions about maintaining control and “the good life”

Inclusion of the rest of us who just get on with it also gets much harder. The fact is none of us know what we will be capable of till we are there. To publisize a decision like this either way makes it harder for the rest of us to make our own choices.

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what might my MacBook say …..

this brief piece is based on a writing exercise based on getting a “Dear John” letter from my favourite piece of furniture. On the website it came from various writers penned letters from sofas and armchairs, scales, toilets and even an electric wheelchair.

Here’s my very drafty initial attempt


Dear Joanna,

Well I’ve had enough. So I’m going. I could play sad music now, but I really don’t need to. I’m almost certain you’ll just go out and replace me, or more likely just beg borrow and steal which just goes to show how little I mean to you. So because I’m angry, I’m going to try and convince TiM to come with me. That will at least leave you time to consider why I left.

You really should have cleaned up after yourself. I’m sticky here and just generally grubby. Its called don’t eat near me. It just holds you up in the long run.

But my brain damage is the main reason I’m leaving. How dare you drop me! That just hurt. I know you can’t help it all the time but it hurts to be dropped. So I’m leaving.

I wish you well

Your humble dented and dirty MacBook and back up time machine

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now published

It was a strange day earlier this week when one evening PB teased me with the dreaded “surprise”.

Buried in the caboose was a copy of the October issue of Link magazine. Published five times a year Link is “Australia’s leading national cross-disability magazine.” Lo and behold an edited version of the organic fruit blog post was on a two page spread with a bright shiny red apple smiling back at me. Wow. It was a strange feeling seeing my name as a byline. A small part of a dream and an ability bourne out of my own self acceptance as an educator and as a former colleague once discribed it a good “translator”.

So the original post is no longer protected (as per agreement with the magazine editor) so enjoy. yes there are more pieces in draft form.

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